There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Research 12 September 2023
Everyone at The Lily Foundation was delighted to hear the recent news that the UK is to rejoin Horizon Europe, the EU’s key funding programme for research and innovation. The scheme provides access to a huge pot of money that UK-based scientists and institutions will be able to apply for again, so naturally brings hope of further research into treatments for mitochondrial diseases.
Awareness 4 September 2023
Last month would have been Lily’s 17th birthday, and everyone involved with The Lily Foundation took a moment to reflect on such a poignant milestone.
Research 3 August 2023
Epilepsy is common to a number of mitochondrial diseases, with both adult patients and children often experiencing symptoms. So we were delighted when Alison, The Lily Foundation’s Head of Research, was invited to represent the charity at a recent global epilepsy best practice workshop in Budapest.
Events 27 July 2023
End-of-term traffic jams, train strikes, unseasonal weather and wild horses couldn’t stop around 60 mito families from coming together with medical experts, Lily staff and volunteers for this year’s highly anticipated Family Weekend.
Research 26 July 2023
As we continue to celebrate our milestone 15th year improving the lives of mito patients, this month we’re focusing on the partnerships we’ve created over those 15 years that have helped us build our charity and expand the mito community at home and around the world.
Personal stories 26 July 2023
As well as the individuals and families who support us, we have a number of corporate partnerships. One such connection is with the owner of a family business who has a very personal reason to donate to us year after year.
Research 23 June 2023
June saw the arrival once again of Euromit, the leading international conference on mitochondrial diseases. And there was a clear theme running through the event’s proceedings – the growing appreciation of the patient voice.
Awareness 6 June 2023
Every summer SouthGate Bath is transformed into a bright and vibrant visual spectacle, and this year we’re delighted that they’ve chosen The Lily Foundation as their charity partner to work with.
Personal stories 31 May 2023
With Carers Week taking place from 5th-11th June, we wanted to highlight some of the challenges unpaid carers face and recognise the quiet contributions they make to society.
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