There’s plenty going on in the world of mitochondrial disease, and you can learn all about our work and read the latest news articles and blogs from across all areas of our charity here.
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Research 17 May 2024
Last Friday, The Lily Foundation were delighted to support a Clinical Study Day that gave us the opportunity to talk to an audience of healthcare professionals and raise awareness of the many ways we’re there for patients and families affected by mitochondrial disease.
Research 16 May 2024
Those with a thirst for scientific knowledge attended events across the UK this week as part of the Pint of Science Festival. Darlington was the venue for Lily’s Research Manager, Maria O’Hanlon, to talk about the unique challenges faced by mitochondrial disease patients and how our charity are helping to address these issues.
Research 10 May 2024
This month, The Lily Foundation bids a sad farewell to one of our long-term team members and supporters, Alison Maguire. Founder and CEO Liz Curtis pays tribute to the hard work, dedication and passion Alison has shown over the last 12 years, and the legacy she leaves in mitochondrial disease research.
Research 23 April 2024
The Lily Foundation are thrilled to announce our pivotal role in the creation of a new cutting-edge, multi-site centre for mitochondrial disease research in partnership with LifeArc and Muscular Dystrophy UK (MDUK).
Research 18 April 2024
One of the most pioneering scientists in mitochondrial research right now is Antonella Spinazzola, Professor of Neuroscience and Mitochondrial Medicine at UCL Queen Square. Her latest paper has just been published and the work, supported by The Lily Foundation, contains promising progress in the search for mito treatments.
Research 16 April 2024
Last month, Alison and Maria from the Lily team attended the 8th Mitochondrial Medicine conference, seizing the opportunity to raise awareness of our work and in particular the importance of patient organisations like The Lily Foundation in mitochondrial research.
Research 4 March 2024
Time is the key to so many discoveries in science, making it a fitting theme for this year’s British Science Week (8th-17th March). We hear from Renata, a bioinformatician on our new Precision Diagnostics project, about how time is playing a key part in both the diagnosis of mitochondrial diseases and the evolution of the technology involved.
Research 29 February 2024
What’s it like getting a diagnosis for, and living with, a disease like mitochondrial disease that few people, even within the medical community, have heard of? These are questions that Dr Stella Johnson from Cardiff University focused on in her recent Masters, and when she needed some help with her study, she knew just where to turn.
Research 22 February 2024
In anticipation of Rare Disease Day, we spoke to our newest research recruit, Jamie, about what first inspired her to work in the field of rare diseases, and why it’s so important for us to keep spreading the word about mitochondrial disease.
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